Loss
As we go through life there often come moments — highly emotional, intensely personal — that we find difficult to share. Writing this has been a journey of sorts, and I’m still not 100% sure I’m ready — there’s certainly more detail that I’m not ready to include. But… deep breath… here we go.
Content warning: Descriptions of being present during the death of close loved ones. Also, it’s not exactly short.
Just to be clear, regardless of everything below I have, and have had, a good life. I have an amazing, caring partner who it’s been my privilege to be with for twenty years, a loving family including my wonderful, talented son, (overall) good health, and was fortunate enough to have had considerable support over the years. I wouldn’t trade any of it. There are many with more traumatic experiences, more trying circumstances, and/or less support than I. I am definitely not looking for anyone’s sympathy.
So why do this? Partly for myself — finally getting this all down to be shared, and working through some of the feelings just that little bit more in the process of writing and editing, has been remarkably therapeutic. Cathartic, even.
But also perhaps you’ve gone (or are going) through your own loss, or know someone who is. Your grief, and the way you experience and deal with it is yours, and yours alone, but if anything here resonates with you I hope that you can find some comfort in knowing that you’re not alone, that it is possible to get through.
And though your experience will not be the same as mine, perhaps some small amount of wisdom. If similar loss remains in your future, maybe you can take away something that will help you prepare in some small way for when it comes, so far as that’s possible.
My Wife
One springtime many years ago, back in the last century not long after my son was born, we discovered that after 5 years of clear results my wife’s breast cancer had not only returned, but had spread. The most visible symptoms were caused by the fluid that had started building up in her chest. We could ease her breathing by periodic visits to drain the sometimes startling amounts of fluid, but the cancer was inoperable.
And so began months of chemotherapy. For anyone unfamiliar with chemotherapy drugs, they are toxic — some extremely so, more often than not in direct proportion to their effectiveness. Many have lifetime dosage limits after which the risks outweigh the potential benefits. She had already previously maxed out on one, so she was on a different combination this time. The side effects, unfortunately, were the same — brutal, and barely alleviated by medications which had their own side effects.
And yet rough as the times immediately after each treatment were, there were brief interludes in between where she felt almost normal, and through it all she was unfailingly optimistic and (for the most part) cheerful, despite the hair loss and discomfort. Her voice, a thin shadow of what it had been during her days as a radio host (how we met) was somehow still full of her personality.
It was just the way she was, and after all she had beat this once before. You couldn’t help but feel that along with her. And so the three of us managed to somehow live our lives, enjoying time together in our back yard, visiting family, doing a few things here and there.
It’s such a simple thing to say, and so much harder to do, but: Enjoy the times you have together, when you can. Find joy in simple things. I’m not advocating throwing caution and responsibilities to the wind, going on every crazy adventure you can imagine, but try not to pass up too many opportunities — it’s easy put things off, complacent in the knowledge that “there’s always tomorrow”, but those chances may never come again.
Which isn’t to say we didn’t have moments when pain, stress, fear, or exhaustion got the better of us. We both understood why when that happened, and because of that there was always forgiveness, but I still deeply regret some of those moments where the spark for an argument, or the failure to deescalate, lay with me.
Hard truth: Regrets, small and large, are normal and unavoidable — we can always use more time with those we love. Some of those regrets will persist long after, and that too is normal. Just be mindful in the moment if you can, so that you can do your best to keep them to a minimum.
Things were looking positive as we headed into the holidays. She had regained much of her normal glow and cheer, and with no more fluid buildup there was a sense of optimism that things were under control. In what turned out to be a fortunate decision, we had some absolutely wonderful family holiday photos done.
Sadly, as anyone familiar with metastatic cancer might expect, this high point was not to last. It was not long into the new year before we were again making regular visits to the doctor, hospital, and cancer clinic. Taking everything into account, including it being unclear how much strain her body could take, our choices were limited. Today there would have been some additional options, but at the time we had little choice but to move on to drugs that were far less harsh, but decidedly less effective… and hope.
The hospital visits in between treatments became stays. As was her nature, she tried to keep up a positive outlook, but it was obvious that she didn’t feel it in her heart any longer. And I… I was trying to be positive and keep her spirits up, while being both deeply afraid of, and in denial about, what the future likely held. We talked, a few times, about funeral and burial arrangements. I’m not proud of how I reacted on a couple of those occasions — wrapped up in my own denial and fear, I couldn’t see the wisdom of some of her choices at the time.
There will be discussions that are painful, possibly extremely so, for one or both of you — but they’re important to have. This is one of them. The fewer choices you need to make in the pain and aftermath of loss, the easier it will be on you. If I have any advice on this point it would be to have at least a general discussion well before any need: life (and death) sometimes happens faster than we can keep up, and making those decisions near or at the end when the discussion is far more emotionally charged can be difficult in the extreme.
And then one spring day she came home for what was to be the final time. It didn’t last long, as she was too frail and ill to be comfortable at home, and I couldn’t bear seeing her in pain. In retrospect, I believe she might have preferred to die at home, surrounded by at least a semblance of normalcy and the life we had made for ourselves, as if after a long and fruitful life together. But we didn’t discuss it, and I was desperate to make her physically comfortable, and in too much fear and (still) denial of the inevitable, to see it at the time.
Much further along in years now, I can understand a little more both the desire and what it requires of those around you. Please, try to discuss these things as openly as you can, painful as they may be. I think she saw how I was hurting and chose not to explicitly voice that wish, at least in part, in order to spare me more pain. If I had the opportunity to go back and ask, and if it was what she truly wanted, I would have gladly borne that burden, no matter the effort.
And so she ended up in palliative care. Despite all the years that have gone by, if I choose to bring up those memories they’re still unbelievably clear. The emotional rough edges and sharp corners have of course been rounded off (a little) but so many details, even trivial ones, remain. In my mind’s eye I can replay every moment of that last evening.
That particular hospital is, sadly, long closed now, but I have nothing but praise for the palliative care staff — an extraordinary level of care and compassion that I have rarely seen in my life.
When the end finally came, peacefully, quietly, it was just the two of us in the middle of the night, with me at her bedside. One last lingering breath… and I was alone.
Not truly alone, of course — I was fortunate to have supportive family, and an employer willing to accomodate my newfound status as a single parent — but it felt that way. There’s nothing anyone can do or say in those moments to really change that, and that’s ok because feeling that way is perfectly natural. You may also feel almost numb with shock at times — I know I did — and that’s also perfectly normal.
If you’re in the support circle of someone who’s going through this, please understand that while it’s important to be available and supportive, they’ll also need space to process at their own pace. Be watchful for downward spirals, but understand that there will be ups and downs — relentlessly trying to keep their spirits up is not necessarily helping in the long run. Listen to what they actually need. Sometimes listening is all they need.
After the initial flurry of activity with the funeral and figuring out a new routine, you may find yourself in a weird place. Looking back, I felt like everyone around me needed reassurance that I was “OK”, and that it was my responsibility to alleviate their worry. And so as much as possible I buried myself in work, and in taking care of our son with the help of family, and tried to push down my loss, my pain. And after a while I even almost convinced myself I was fine.
I wasn’t.
This is, of course, just common sense — why would I be? It was, however, an unsurprising defence mechanism. Emotional exhaustion is a thing, and when you’re in a constant state of living up to responsibilities that you still have (or believe you do) and reassuring others that you’re not a complete wreck, only to fall apart in those moments you can relax enough to feel what you’re bottling up… it becomes physical exhaustion too. And so the mind deceives itself.
Try not to let it for too long. It’s okay to just feel what you feel, and not hide it all away (just don’t take it out on others!). Take your time: those around you — family, friends, others — who truly care will make allowances.
Sooner or later, when you’re ready, you do need to start actually working through it. It will be painful, but it’s important for your long term well being. Even if it’s just writing your feelings down, only to delete them afterwards. Or finding someone, anyone, you can talk to about it. Whatever works for you. Speaking from experience there’s a good chance bottling it up will, sooner or later, be notably unhelpful.
Honestly, if it wasn’t for our son I don’t know how I would have made it through even with the support I had, though he was far too young to discuss these things with him. It’s hard to explain why: someone to focus on, sure, but also so much more. Seeing her in his eyes, his mannerisms, certain expressions. Sharing with her, silently in my mind, funny or amazing things he said or did as he grew. Gratitude for this extraordinary person that we brought into the world together. Quite simply his joy at life, at just being who he was. And more that I can’t even put into words.
Whatever your route to dealing with the grief, if you make an effort it will, slowly but surely, work itself out one way or another though it take months or years. Life, as they say, goes on and living life during the process will help. In my case that eventually involved not one but two career changes, meeting my now partner, and watching my son grow into an extraordinary young man.
I gradually came to accept the regrets as natural — you will of course, as I do, still chide yourself over specific ones that you believe could have been avoided, but others would have taken their place. Pain, and painful memories, will subside and recede into the background — not to fade or disappear entirely, but though they may make their presence known years (or decades) later they will be less sharp, in the driver’s seat less often.
I don’t have any magic formula or sure-fire suggestions or advice; your experience and your needs will be different than mine. Just find some way, some outlet, to process the pain and grief that works for you, and something to hold on to, and give it time. Lots of time. Understand that it’s okay to not keep your life on hold indefinitely, because this experience will always be a part of who you are now, on some level.
Two and half decades later there are still things, sometimes unexpected ones, that will bring memories and grief flooding back for me. You can’t expect anything else from something — someone — that profoundly affected your life. But you will be able to ride it out better over time.
Cherish the good memories, the happy moments. They are jewels beyond price, and will help you deal with the more painful ones. Take opportunities to make new ones, small and large, while you can.
My Dad
Almost eleven years ago my dad was diagnosed with pancreatic cancer. As you can well imagine, this brought a ton of memories and feelings flooding back. They lay heavy on my mind the day of his surgery as we all waited for many hours, worried about what the outcome that day would be, let alone the future — it’s a far from simple procedure. Here we go again, was the refrain in my head.
I had need to take a couple of work calls that day: I’m afraid I was, if not actively rude, certainly not as polite as I normally try to be.
Whether by luck or fate, things turned out extremely well that day. His surgeon was excellent, an expert who taught internationally; it seemed to have been caught early enough; and, frankly, my dad was just too damn tough and stubborn to give in. There were certainly setbacks and more visits to the hospital in the years after, but to all appearances he had beaten the odds.
He wasn’t totally free of health issues of course, and not just from the cancer, but overall he was as good as you could expect. My parents went on cruises they had always wanted to go on, did other travelling and their usual day to day activities, and he kept up with all of the maintenance on the property. Perhaps not as quickly as he once had, and with more and longer breaks, but he was in his late seventies after all. When there were plumbing issues, he spent several days crouched in the crawlspace under the house cutting and soldering copper pipe himself rather than get (or let!) anyone else to do it.
I will reiterate here that hard learned (and re-learned) lesson: enjoy the moments that you do have with those you care about, they may not come again. There are so many things I’m glad we did during that time — and not just the larger things, but smaller shared moments as well. Every joke, every discussion, every computer problem he had is now a precious memory.
And so when he unexpectedly passed away three years ago it was, despite his preexisting conditions, a huge shock: there was no indication there was anything wrong that day, but suddenly there I was, on a sunny Friday morning in January, desperately performing CPR on my own father while we waited for the paramedics to show up — even though we knew that even the barest glimmer of hope was more wishful thinking than anything real.
It didn’t take long for them to get there, but in that moment it seemed like forever.
It’s their job, but I’m still grateful for the 911 operator counting us through the compressions: unless it’s something you do or practise regularly it’s hard to keep on track when emotions are high, even though I had taken a CPR course. (Which, if you’re at all amenable, I highly recommend — though fruitless in this case, it can be a great help.)
After it was all over, there we were — just a few family members, stricken and more than a little in shock. It was familiar, and yet totally different too. I was surrounded by those I loved, all but one — and that was enough to feel that clutch of loneliness. One part that was familiar: the days following making arrangements, with the added complication of needing to accomodate COVID restrictions that were in place.
Thankfully my parents had discussed much of this years before, and had already bought a cemetery plot (just a few months before, prophetically enough) so much was straightforward — lots of paperwork, but (relatively) few decisions of major consequence to be made. In a weird way the pandemic restrictions helped, because it took a lot of options off the table immediately. Even the task of putting together a memorial video in those first few days: One of the hardest things I’ve ever had to do — it still tears at my heart to watch it — but even that had help from earlier discussions with my mom.
Once again: it’s enormously helpful for everyone to have some of this laid out ahead of time. There may be some that view it as morbid but understanding a loved one’s wishes makes things so much easier for the survivors afterwards, and/or is one less thing for everyone to deal with immediately before. Your comfort level with the amount of detail you want to go into will vary, but I encourage you to at least consider the question.
And so after a small graveside service for close family, we all had to go on living our lives as best as we could. But it was my dad, a constant presence for literally my entire life, and though the hole left behind is different from the one my wife left, it too has changed the shape of my life since. One difference: While it was in the end much more sudden, we also had years to prepare for the possibility. As much as you can actually “prepare” emotionally for such a thing — I’m not sure that you can for that immediate moment, but I think perhaps it’s helped a little as time has gone on.
It’s also not my spouse: This time around I found myself, in the midst of my own pain, in the role of trying to support my mom in the way that others tried to do for me all those years ago — while understanding in a very real way that there’s a level of loneliness that none of the rest us can really help with, we can only be there for her as she deals with that in her own way.
That first year was very busy: plenty of painful moments with the loss still fresh, but also lots of things to deal with in our lives and settling the estate. Some of the grieving was thus semi-postponed, but there’s no schedule to follow, and in due time it came along.
For whatever reason I found the winter holidays just past much harder than the previous year, or even that first year — I think we were all still a little in shock then. Silly things, like a Christmas display of various bagged pistachios: He loved pistachios, and standing there in the grocery store a couple of months ago I was almost overcome with the flood of emotion. I took a deep breath, and finished my shopping, but I very nearly couldn’t.
As noted earlier it’s normal for there to be ups and downs, and emotions are organic, chaotic things. Progress will not be linear.
And there are constant reminders of the impact he had on my life, in some pretty fundamental ways (aside from the obvious): He’s responsible for my early exposure to computers, before home computers were even much of a thing. I can close my eyes and picture him taking me into work at Control Data in Montreal, see the line printers spewing fanfold paper out the back, hear the constant din of the computer rooms, feel the vibration of the raised floors under my feet, the conditioned air cool against my skin…
When I do any woodworking, it’s mostly with tools that used to be his. Even taking pictures recently, I thought about how long ago he used to be a photographer and develop his own film, though I mostly remember him doing it for printed circuit board masks. These thoughts, these memories, can be painful when they come up, but there’s also gratitude. Gratitude for the things I learned, most importantly the confidence to learn new things, to try things I hadn’t done before and to figure it out as I go along if needed. Most of all just for who he was and the times that we had together: Growing up, as an adult, and in the last few years before he passed.
I am also fortunate to have a tremendous level of support, most of all from my wonderful partner. And maybe, just maybe, as the years have gone by, and my own mortality comes more to mind each year, I’ve gotten just a little better at understanding my pain for what it is, at handling it better, and with more perspective.
It never goes away entirely but if you face it, it will get better. Mine is still a work in progress after three years, and yes also even after two and a half decades, but there is progress nonetheless.
I said this before: Your experience is (or will be) unique from mine, but you’re not alone. Find support where you can. Prepare ahead of time in whatever ways you can. Most of all, once again:
Cherish your time together, whether that’s moments happening now, or fond memories past. Don’t squander too many opportunities for even small joys, for that precious time and connection is all we really have.